Patient-generated Data

In this project we are exploring longitudinal ePRO analysis methods and visualisation techniques that can capture ToxT and provide meaningful benefit to routine care treatment decisions, clinical research and shared decision making with our patients.

CASA is a pilot project to test the feasiblity of wearable sensor-triggered ecological momentary assessments and electronic patient-reported outcomes in a home-based palliative care setting. We collected data from patients and their primary caregivers.

This project aimed to establish a more modern and patient-centred palliative radiotherapy (RT) paradigm. It clinically implemented a simulation avoidance approach, which we called simulation-free RT (SFRT). It uses standard image-guidance (IGRT) equipment and we monitored patient outcomes via routine collection of electronic patient-reported outcomes (ePROs).

Project to establish routinely collected electronic patient-reported outcomes (ePROs) as a one key element underpinning innovations in care and clinical research of patients with prostate cancer referred to Northern Sydney Cancer Centre (NSCC) Radiation Oncology department.