Patient-generated Data

Visualising and analysing longitudinal ePRO data
In this project we are exploring longitudinal ePRO analysis methods and visualisation techniques that can capture ToxT and provide meaningful benefit to routine care treatment decisions, clinical research and shared decision making with our patients.
Poster (PDF)
Visualising and analysing longitudinal ePRO data
Wearable triggered EMAs and ePROs during home-based palliative care (the CASA project)
CASA is a pilot project to test the feasiblity of wearable sensor-triggered ecological momentary assessments and electronic patient-reported outcomes in a home-based palliative care setting. We collected data from patients and their primary caregivers.
Main paper [via RG] Letter-to-editor [PDF] Interactive app
Wearable triggered EMAs and ePROs during home-based palliative care (the CASA project)
Patient-centred Palliative RT via Simulation Avoidance and ePROs
This project aimed to establish more modern and patient-centred palliative radiotherapy (RT). It clinically implemented a simulation avoidance appraoch using standard image-guidance (IGRT) equipment and started routine collection of electronic patient-reported outcomes (ePROs) in this challenging patient group.
Main Publication Letter-to-editor (Green Journal) Updated results @ Letter-to-editor (Red Journal) Poster @ RANZCR 2021
Patient-centred Palliative RT via Simulation Avoidance and ePROs
ePRO-driven Community Referral Identification and Support Program
This collaborative project between the Radiation Oncology department at Northern Sydney Cancer Centre and the community support organisation Canteen developed and successfully implemented an ePRO-driven process to identify and offer referral to Canteen’s services (psychosocial support for families) and the Quitline service (smoking cessation).
Slides (HTML) Slides (PDF) Video @ SCC 2021
ePRO-driven Community Referral Identification and Support Program
Routine ePROs in the Care of Prostate Cancer Patients Treated with RT
Project to establish routinely collected electronic patient-reported outcomes (ePROs) as a one key element underpinning innovations in care and clinical research of patients with prostate cancer referred to Northern Sydney Cancer Centre (NSCC) Radiation Oncology department.
Slides (HTML) Slides (PDF) Interactive Dashboard
Routine ePROs in the Care of Prostate Cancer Patients Treated with RT